Like any other mother, I prayed for perfect, healthy children with each of my pregnancies. Each of my sweet babies had ten fingers, ten toes, and hit every infant and toddler marker on time, if not before.
My children collectively were, Valedictorians, national champion athletes, beauty queens, and rock stars. But most of all, they had wonderful, big hearts that were sensitive to the needs of others.
Like any family though, we could never imagine how we would handle a baby born with special needs. Not that we were indifferent to the thought, but it just wasn't an issue that we had ever had to face, as so many families do.
We could never imagine dealing with the needs of a special child, that is, until Eddie Jett was born. My first-born grand son. My now, five year old angel, who was born with the very rare condition of 1-p36 deletion syndrome--- a syndrome in which the tips of the 1p-36 chromosome is deleted---a syndrome where the deficit can lead to a lifetime of disability.
My daughter struggled deeply with the thought that her precious baby boy would ever be able to breath properly, eat without a tube in his stomach, sit up, crawl, walk, run, speak, etc.. It was all a grey-cloud, shrouded mystery. Most of the time we didn't even have time to think about his future. For my daughter, just getting him to medical appointments, and maintaining his little life was a day to day battle.
Now, our family could never imagine what we would do if we were left un-blessed without our Eddie Jett. He has taught us all more about patience, kindness, humility, selflessness, and most of all unconditional love, than anything, or anyone else could have.
Eddie Jett's first day of his second year of school began today. The picture below represents the love that our family has for this amazing boy in such a wonderful way. My three year old grand son, Landon, who is two years younger than Eddie Jett, ran to take Eddie's hand this afternoon. They clasped tiny fingers as they made their way down the sidewalk to the doors of Eddie's school.
No one asked Landon to help him. We didn't have to coax Eddie Jett to take Landon's hand. They just came together in the most innocent and loving way, with Eddie Jett a bit unsure in the balance department, and Landon holding on to a toy net of fish in his free hand that he didn't want to leave behind in the car.
A picture can often capture what many written words cannot. This image melts my heart every time I look at it...unconditional love.
What inspires you?